Over 500 people participated in the Samman Association’s first edition of the ‘Jiyo Samman Se’ run for epilepsy awareness in Malad on Sunday.
The event was an inspiring display of solidarity as hundreds of runners, volunteers, and supporters came together for India’s first-ever timed epilepsy awareness run. Persons living with epilepsy came together with support from doctors and well-wishers to raise epilepsy awareness, dispel myths, stamp out stigma about the medical condition and promote inclusivity.
The ‘Jiyo Samman Se’ Run for epilepsy awareness | FPJ Photo
“The Jiyo Samman Se Run is a step towards changing the narrative about Epilepsy. Community support and fostering inclusivity can help to make a difference in raising awareness and removal of stigma, “said Dr. Sangeeta Ravat, Dean, Seth G S Medical College and KEM Hospital, president of Indian Academy of Neurology and President of Samman Association.
“The event has overwhelming support from healthcare professionals, fitness influencers, and epilepsy advocates, reaffirming the need for continued conversations about understanding and acceptance,” said Dr Jayanti Mani, neurologist and epileptologist at Kokilaben Ambani Hospital and the Secretary of Samman Association.
The 10-km event was flagged-off by Aditya Mehta, epilepsy warrior, ACSM certified running and nutrition coach and international triathlete. Shekhar Pathipaka, entrepreneur and sponsor of various causes flagged-off the five-km run. Dr Natasha Tipnis, neurologist and epileptologist, Jaslok Hospital flagged-off the three-km run.
Participants wore purple T-shirts, all finishers got wooden medals and winners got trophies with some exciting prizes in multiple categories and 48 Awards were presented across categories for the five-km and 10-km timed runs.
Participants enjoyed a sumptuous and healthy breakfast, a dance warm-up and cool down, a ‘Wall of Courage’ where participants left messages, and a selfie point. Neurologists shared some interesting insights on epilepsy. An emcee kept the audience entertained through multiple challenges and quizzes.
Samman Association, formerly known as the Indian Epilepsy Association, Bombay Chapter, has been supporting individuals with epilepsy and their caregivers since 1971. With over 400 members and more than 50 years of service, the organisation has conducted rural epilepsy clinics, awareness programs, and educational initiatives across Maharashtra. The mission of Samman Association is to eliminate stigma, and create a society where epilepsy is understood and accepted.
